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Rare & orphan diseases

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©kartolo #944036674 | source: stock.adobe.com
Currently there are no therapy options available for those suffering acute radiation sickness. But hope is on the horizon. A combination of carbon and pectin developed by the EU-funded NanoMed project can absorb damaging molecules generated in the body after exposure to radiation. It’s the first step towards a simple pill that can be given to those exposed to high levels of radiation.
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©Марина Демешко #474032995 source: stock.adobe.com 2023
A rare infectious disease that can cause permanent blindness may soon have an approved treatment for the first time. A formulation of the molecule polihexanide, optimised by the EU-funded ODAK project, has been shown to cure 87 % of patients. The drug will soon be available to patients across Europe through an early access programme.